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NEED - Call for patients with sickle cell disease

Are you living with sickle cell disease?

We would like to hear about the challenges you experience in your daily life, during your treatment and in the care you receive.

Your experiences will help us better understand which needs are currently not being adequately met. These insights can contribute to future research and to better care for people with sickle cell disease.

Who can participate?

  • Adults living with sickle cell disease
  • Adolescents aged 12 or over with sickle cell disease and their parents
  • Friends or relatives completing the questionnaire on behalf of an adult patient who is unable to do so themselves
  • The person living with sickle cell disease resides in Belgium

Interested?

Complete the questionnaire via this link.

Completing the questionnaire takes approximately 40 minutes. You can pause at any time and continue later. Participation is completely anonymous.

 

 

About NEED

NEED is financially supported by the Belgian Federal Science Policy (BELSPO) through the INFRA-FED call.

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Project coordinators

dr. Irina Cleemput

KCE

irina.cleemput@kce.fgov.be

prof. dr. Robby De Pauw

Sciensano, Department of Epidemiology and Public Health, Service Health Information

robby.depauw@sciensano.be