NEED: applicability to rare diseases


The NEED approach was developed with the intention to be potentially applicable to all health conditions. However, in view of the complexities related to research, development and care of rare diseases and the need for renewed or additional policy incentives, the NEED approach seeks to ensure inclusivity for such rare disease patients.

Therefore, this study aims to assess to what extent the NEED approach is applicable to rare diseases, and how evidence collected on rare diseases according to this approach could be used by decision-makers.

Links to the reports:

About NEED

NEED is financially supported by the Belgian Federal Science Policy (BELSPO) through the INFRA-FED call.

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Project coordinators

dr. Irina Cleemput


prof. dr. Robby De Pauw

Sciensano, Department of Epidemiology and Public Health, Service Health Information